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FASD is ...
Our goals
Programmation
For whom?
TICKETS
Our speakers and guests
Main partner : OPHQ
Supporters and Sponsors
Organizing and advisory committees
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FASD is ...

 

Discovered nearly 54 years ago, Fetal Alcohol Spectrum Disorder is a term that is used to describe the range of physical behavioral and neurodevelopmental effects that can occur in an individual who was prenatally exposed to alcohol. Between 2% and 5% of Canadian children have FASD. Despite the work of SAFERA since 1998 and the perseverance of other pioneers, FASD remains little known in Quebec, unlike in the rest of Canada.

Even more concerning, Quebec is the province in Canada with the highest rate of alcohol consumption during pregnancy. The percentage of people with FASD in Quebec could therefore be higher than what is observed in the rest of Canada.

A very large number of children exposed to alcohol during pregnancy end up being taken care of, in Quebec as elsewhere, by youth protection services. Indeed, because of alcohol consumption their mothers and families have major difficulties and are unable to properly care for their children and ensure their safety.

Children in the youth protection network are among the most vulnerable patients in society. But within this group, children with FASD are even more at risk because of the condition itself, which is permanent. They need to be screened and receive services adapted to their disability, sometimes beyond reaching the age of majority. Current research shows that in Quebec at least 7 out of 100 children placed in foster families have FASD and this percentage is thought to be significantly underestimating the reality. In fact, Quebec does not have specialized any diagnostic clinics, and as FASD is little known, the condition is rarely detected.

These children become adults, who have to navigate as best they can on rough seas, and without navigation instruments adapted to their condition, they often end up on the street, in jail or in addiction treatment centers, struggling with mental health issues. For people who are affected by this condition, having FASD in Quebec is like living on a deserted island within a vast archipelago populated by stakeholders who are unable to ensure safe navigation due to ignorance of FASD.

We must talk to each other.
Welcome to the SOS FASD conference!

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SOS FASD! : the conference

Our goals:

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For whom?

If you are a person who would not hesitate to throw a lifeline to someone in distress.

This conference is for you;
Whether you are a parent, caregiver, or family member of someone exposed to alcohol before birth.
Whether you are a doctor, nurse, specialist or any other stakeholder in the health field.
Whether you are a psychologist, neuropsycologist, pediatrician or any other specialist in the assessment and rehabilitation of developmental disorders.
Whether you are a worker or manager of various specialties or fields of practice, involved with children, adults and families, particularly in youth protection and juvenile delinquency, addiction treatment, homelessness, prostitution, justice, education, early childhood, perinatal care, community organizations, pediatrics including social pediatrics.
Whether you are a foster family or an intermediate family-type resource.
Whether you are a teacher, school support staff or any other education professional.
Whether you are a professional from a department affected by FASD or a representative of a government agency.

This symposium will provide you with the lifeline to support people with FASD and their families.
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Our programming

* Click on the names of the speakers to consult their biographies.

 

8h15 Opening of the conference
8h30 Word of welcome Annie Rivest, CEO of Safera
8h35 Speech : Lionel Carmant, Minister for Health and Social Services,
Lise Lavallée deputy for Repentigny ,
Ian Lafrenière Minister responsible for Indigenous Affairs
Mr. Guy Niquay, Assistant to the CEO of the CISSS de Lanaudière
9h25 Opening

 


BLOCK A : STATUS REPORTS.

9h30 Overview: FASD services in Quebec and Canada – Colombe Turcotte, nurse and administrator member of Safera
9h50 Presentation of the ongoing work of the Association pour la santé publique du Québec about FASD – Isabelle Létourneau, FASD Project manager, ASPQ
10h05 Break

 

BLOCK B : Clinical testimony

10h20 Testimony of Nathalie Vaillancourt, mother of a young woman
10h40 The diagnosis of FASD in Canada and the distinction between FASD and other neurological or neurodevelopmental disorders - Dr. Anne-Marie Goyette, Developmental Behavioral pediatrician.
11h10 Discussions between the participants
11h20 Neuropsychological aspects of FASD and strategies – Dre Francine Lussier, neuropsychologist, founder of Cenop and Valérie Rouby M. Ps., neuropsychologist
11h50 Discussions between the participants

12h00 à 13h00 Dinner - Capsules

- FASD in practice by Safera
- Capsule Psychotropic Medication Algorithm for FASD Dr. Mansfield Mela (MBBS, FWACP, MSc. Psych, FRCPC) presented by Colombe Turcotte, nurse and administrator member of Safera
- N.E.A.T. Clinic and Jordan's Principle Francesca Dansereau, coordinator at the NEAT Clinic and Anny Lefebvre, coordinator of Indigenous Services at the NEAT Clinic. Founder of the clinic Dr. Caroline Zanni
- Danielle Nadeau, researcher at the CIUSSS de la Capitale Nationale, will present the results of the research: Prenatal exposure to alcohol and drugs in babies reported in child protection at birth - The tip of the iceberg?
- Capsule on the research in progress in the laboratory of Dr. Serge McGraw, of the Center for Research in Reproduction and Fertility (CRRF) of the University of Montreal, make it possible to precisely identify the impairments induced by prenatal exposure to alcohol on young embryos.
- Capsule by Pascal Gagné, doctoral candidate at the Institute of Feminist and Gender Studies at the University of Ottawa, presents: FASD & Inappropriate Sexual Behavior: Strategies for Caregivers and Professionals.
- Duo capsule Katerine and Gabriel : When FASD invites itself into the life of a couple!
- Mocktail recipe



BLOCK C : FASD IN EVERYDAY LIFE

13h00 Some strategies for a response to the needs and effective interventions on a daily basis; at home, at school and in social life in various contexts from birth to maturity – Annie Rivest, CEO of Safera
14h15 Discussions between the participants
14h25 Dream Catcher, created by the NB FASD Centre of Excellence, an innovative model! – Annette Cormier, B. Sc. inf. Recipients of the first-ever Claudette Bradshaw Innovator Award
14h55 Break
15h10 Transition project for young adults with FASD: what young adults want -Hélène Courchesne, Manager: Planning and Funding Brokerage and Manon Kelso, Manager: Fetal Alcohol Resource Program , for ABLE2, Ontario
15h35 Discussions between the participants
15h45 Development of courses of action for decision-makers
16h20 Closing remarks and instructions for participate of contest.
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Our speakers and guests

Ian Lafrenière

Minister responsible for Indigenous Affairs (...)

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Lise Lavallée

deputy for Repentigny (...)

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Mr. Guy Niquay

Assistant to the CEO of the CISSS de Lanaudière (...)

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Dr Anne-Marie Goyette

Developmental Behavioral Pediatrician (...)

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Dr Francine Lussier, Ph. D.

neuropsychologist, associate professor in the department of psychology at the University of Quebec a (...)

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Valérie Rouby M. Ps.

neuropsychologist, specialized in pediatric neuropsychology for 20 years. (...)

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Colombe Turcotte

One of the first to act for the cause of FASD, emergency nurse until 2009, Colombe crosses paths wit (...)

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Manon Kelso

Manager: Fetal Alcohol Resource Program (...)

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Hélène Courchesne

Manager: Planning and Funding Brokerage (...)

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Annette Cormier

Bachelor of Science in Nursing, has more than 30 years of experience in the maternal and child healt (...)

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Nathalie Vaillancourt

Holding a teaching degree and also a hospital research nurse, (...)

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Capsules

Pascal Gagné

BSc Co, PhD Candidate (...)

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Danielle Nadeau

Establishment researcher at the CIUSSS de la Capitale Nationale (...)

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Serge McGraw , Ph.D.

Assistant Professor-Researcher, Department of Obstetrics and Gynecology, Faculty of Medicine, Univer (...)

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Anny Lefebvre

Coordinator of Indigenous Services at the NEAT Clinic (...)

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Dr. Caroline Zanni

N.E.A.T. Clinic (...)

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Francesca Dansereau

Coordinator of the NEAT clinic (...)

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Dr. Mansfield Mela

Dr. Mansfield Mela MBBS, FWACP, MSc. Psych, FRCPC Director, gave us permission to use and translate (...)

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Katerine and Gabriel

When FASD invites itself into the life of a couple! (...)

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Tarifs - (à venir)
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Supporters and Sponsors

We thank the people and organizations who support us for the cause of FASD.

­Support

Dr. Mansfield Mela

Dr. Mansfield Mela MBBS, FWACP, MSc. Psych, FRCPC Director, gave us permission to use and translate (...)

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­Sponsors

Solidarity economy fund

Thank you to the @Caisse d'économie solidaire, the financial cooperative of collective enterprises (...)

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Main partner : OPHQ

This conference would not have been possible without the financial participation of Support program for promotional organizations of the Office des personnes handicapped du Québec . A big thank you to the OPHQ for their support.
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Organizing committee and advisory committee

We thank the committee members for their collaboration and dedication to the cause of FASD. .

Organizing committee

Colombe Turcotte

One of the first to act for the cause of FASD, emergency nurse until 2009, Colombe crosses paths wit (...)

Lire la suite

Annie McClure

Freelance for more than 25 years and V.P. secretary of Safera (...)

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Chantal Brouilette

Special education teacher and painter, she is V.P. treasurer of Safera (...)

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Isabelle Bouchard

With a bachelor's degree in social work from the University of Sherbrooke since 2003, she worked in (...)

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Consultative committee

Guillaume

Young adult with FASD. (...)

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Colombe Turcotte

One of the first to act for the cause of FASD, emergency nurse until 2009, Colombe crosses paths wit (...)

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Chantal Brouilette

Special education teacher and painter, she is V.P. treasurer of Safera (...)

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Annie Filion

Administrator of the *FPAQ and socio-judicial worker for Equijustice (...)

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Suzanne Petarka

Representative of ADREQ . (CSD) -Montreal (...)

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Geneviève Ashini

Health and Social Services Advisor at RCAAQ (...)

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TICKETS

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Suzanne Petarka

Representative of ADREQ . (CSD) -Montreal Suzanne has been accredited as a family-type resource since 2007, and has represented ADREQ (CSD) - Montreal since 2009. "I am fortunate to be the mother of heart of five beautiful young people, one of whom has FASD." She is a member of the advisory committee.